Finn Bullers journalist | disability rights activist
Finn Bullers was the epitome of a fire eating journalist. But what he had to deal with and never complained about, was his own progressive neurological disease called Charcot Marie Tooth. After 15 years with the Kansas City Star, Finn became a policy adviser and full time advocate for people with disabilities. He fought for changes in KanCare that limited the amount of in-home care that he and other Kansans were allowed. Finn brought a tenacious approach for fighting for a number of key advocacy issues including customized wheelchairs. He was a member of the President's Council on Disabilities. Because of his efforts , the United Spinal Association named Finn its 2014 Advocate of the Year.
When his voice began to go he continued to speak loud which was a huge expression of the intense belief in causes for justice. When he could no longer type, he used the one finger he could control and continued to write furiously to his congressman as well as moving articles that articulate exactly what he needed to tell us. He made no excuses himself or for the rest of us. Finn became my friend and cheerleader. I followed him to protests. I followed him to the capital in Topeka to speak several times. I followed him through the hallway of the capital to find a piece of tape to hold is breathing tube together after one rally. What a trip. Finn had no fear.
I miss him.